Stryder's Story

fighting for a cure!

Stryder's Story started when he was a baby and will continue through out his entire life!

Stryder's Story in Pictures

Stryder the fighter

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Tip a Cop

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Bring on the Green

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Zumbathon

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Baltimore

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Procedures

Stryder Sleep Study

Mayo Clinic – Rochester, MN

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In the News

Ambassador

Fun

Sparrows Train ii-7

Family

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Bumps and Bruises

Stryder Bump

Hypermobility

Laying down

Make a Donation

From Blog.

MAW Disneyland 2013 -Race-20

Make A Wish – November 2013 PT3

Our first day at Disney was “Magical!” I know it’s c...

Make A Wish – November 2013 PT2

Our first night at Disneyland we went to Main street and had dinner...

Make A Wish – November 2013 PT1

We have finally returned from our whirlwind travels. We started out November 26th with Stryder’s Make a Wish trip, came home for a day and left December 2 to John Hopkins...

Thank You:

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songs from the past

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CCMS

4 Paws for Stryder

A service dog (SD) will help Stryder in so many ways. Last year when we began the search for a service dog, we knew that Stryder had epilepsy and we knew he had a connective tissue disorder, both are great reasons for a SD. Our journey for a service dog started prior to knowing he had Landau-Kleffner Syndrome and even then it was a great need, now it is imperative that we help him the best way we can because LKS will cause permanent brain damage when spikes occur and we do not see them. Thank you to everyone! We raised enough for the Service Dog and will go in January for Two weeks to train with the dog and bring it home.

What is Stryders Story?

Stryder is still on the road of being diagnosed. When he was three, he was diagnosed with Ehlers-Danlos Syndrome, but that was taken away when he was 5 because he has an enlarged aortic root dilation (aneurysm) that is large and does not happen in children with EDS. For now, we are calling it unspecified connective tissue disorder

He also has epilepsy and Landua-Kleffner Syndrome. LKS is a rare type of epilepsy, less than 300 people world wide have ever been diagnosed with it. In Stryder's case, he has spikes in his sleep every single second and he also has many other types of seizures. Stryder will have some brain damage and any time his siezures relapse, he will have more brain damage. Prognosis for this type of epilepsy is poor.