Stryder's Story

fighting for a cure!

Stryder's Story started when he was a baby and will continue through out his entire life!

Stryder's Story in Pictures

Firetruck Ride

2014-06-04 10.07.50

Keebler

Keebler 1 month old

Stryder the fighter

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Tip a Cop

2013-01-31 18.19.49

Bring on the Green

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Zumbathon

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Baltimore

2013-02-21 14.47.57

Procedures

Stryder Sleep Study

Mayo Clinic – Rochester, MN

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In the News

Ambassador

Fun

Sparrows Train ii-7

Family

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Make a Donation

From Blog.

Country store

Surgery

I really need to update this site more and I apologize for not posting...

June 28

Yesterday was a full day and a successful day in so many ways! I wish I could say Thank you to everyone by name, but I am so afraid that I will miss so many that I am only going to name a couple. First, Angelia Wagner, Stryder’s teacher! She has been amazing both in the classroom...

2014-06-27 17.47.28

Auction

Real quick post to those that don’t do Facebook – We have ...

Thank You:

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songs from the past

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CCMS

4 Paws for Stryder

A service dog (SD) will help Stryder in so many ways. Last year when we began the search for a service dog, we knew that Stryder had epilepsy and we knew he had a connective tissue disorder, both are great reasons for a SD. Our journey for a service dog started prior to knowing he had Landau-Kleffner Syndrome and even then it was a great need, now it is imperative that we help him the best way we can because LKS will cause permanent brain damage when spikes occur and we do not see them. Thank you to everyone! We raised enough for the Service Dog and will go in January for Two weeks to train with the dog and bring it home.

What is Stryders Story?

Stryder is still on the road of being diagnosed. When he was three, he was diagnosed with Ehlers-Danlos Syndrome, but that was taken away when he was 5 because he has an enlarged aortic root dilation (aneurysm) that is large and does not happen in children with EDS. For now, we are calling it unspecified connective tissue disorder

He also has epilepsy and Landua-Kleffner Syndrome. LKS is a rare type of epilepsy, less than 300 people world wide have ever been diagnosed with it. In Stryder's case, he has spikes in his sleep every single second and he also has many other types of seizures. Stryder will have some brain damage and any time his siezures relapse, he will have more brain damage. Prognosis for this type of epilepsy is poor.